Warrior quick links

Warrior Chris Ruth

Warrior Shannon MacDonald

Warrior Mark Rose

Warrior BO

Warrior Bobby Buchholz

Warrior Nicole Keplinger

Warrior Jonathan Traylor

Warrior Bernadette Forystek

Warrior Judy Akin

Warrior Andre

Warrior Shane Blanchard

Warrior Elizabeth (Biz) Chapman

Warrior Cayden

Warrior Dee Moore

Warrior Lisa Baxter

Warrior Brittany Du

Warrior Teresa Clark

Warrior Julia Aronson

Warrior Patricia Stabler Yates

Warrior John Chen

Warrior Chris Ruth  Ontario Canada

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Warrior Chris needs a Kidney.

He is listed at Thunder Bay Regional Health Science Centre.

1-416-340-4800 EXT-4848

Blood Type: O

PAIRED EXACHANGE ACCEPTED

To hear Chris's full Interview On Hope With Jonathan: CLICK HERE

Warrior Mark Rose Massachusetts, USA

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Warrior Mark needs a Kidney.

He is listed at Beth Israel Deaconess Medical Center. 1-617-632-6851

Blood Type: O

To hear Marks full story CLICK HERE

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Warrior Bobby Buchholz

Kentucky, USA

 
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Warrior Bobby needs a Kidney.

He is listed at UK Health Care Lexington 1-859-257-1000

Blood Type: A+

To hear Bobby's full story CLICK HERE

Warrior Shannon MacDonald

Ontario, Canada

 
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Warrior Shannon needs a Kidney.

She is listed at St Michaels Hospital  1-416-867-3676 or LiveDonorTeam@smh.ca

Blood Type: A

Hear her story on HOPE WITH JONATHAN CLICK HERE

Warrior Shannon is fighting PKD (polycystic kidney disease) Diagnose at the age of 12, her kidneys went into failure at the age of 40 shortly after a stroke she has started dialysis and continues treatments twice a week.

Warrior Nicole Keplinger

 USA

 

Warrior Nicole was born at 1.5LBs at 27 weeks. She was born with Hypoplastic Kidneys. Her Kidneys were too small to function and even molded together causing them to become horseshoe kidneys. Nicole was placed in the NICU for the first 3 Months of her life as she was so small.  

Doctors thought that she would not live past her first year. But Nicole is a true Warrior. She received her kidney transplant at the age of five. 22 years later Nicole still has her transplanted kidney. 

After many surgeries and hospitalization Nicole continues with her treatments.  

Nicole has stated “I have had some hiccups along the way but I wouldn’t change it for the world” 

We at Kidney Warrior Merch support our Warrior Nicole in her situation and commend her for her bravery in sharing her story with the world and in her fight with Kidney Disease. 

Warrior BO

Massachusetts, USA

 
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WEBSITE: www.kidney4bo.com

FACEBOOK: @Kidney4Bo 

INSTAGRAM: @Kidney4Bo

EMAIL : kidney4bo@gmail.com

Warrior Bo has end-stage renal failure and needs a kidney. He is listed at Brigham and Women's Hospital in Boston, MA in the US. He is a lung cancer survivor and has type one diabetes. Because of these experiences, he was already somewhat prepared for the medical side of CKD. He wasn't, however, prepared for the year-long search for a kidney donor and need to rely on the community for his ask. He has been actively sharing his story on Facebook and Instagram since April, and is hoping he gets a transplant before he needs dialysis. You can find him on Facebook or Instagram at @Kidney4Bo. To read up on how to register as his living donor, check out www.kidney4bo.com. You may contact him via email at kidney4bo@gmail.com

Warrior Jonathan Traylor

Texas, USA

 
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Warrior Bernadette Forystek

Utah, USA

 
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LISTED AT THE: UNIVERSITY OF UTAH HEALTH

PLEASE CALL: 801-581‑2634

FACEBOOK: CLICK HERE

My name is Bernadette Forystek and I am in dire need of a kidney transplant.  My doctor says I will need a transplant or dialysis within the next 6 months. Without a living donor, the wait time for a kidney is around 5-7 years.  My favor of you, is to ask that if you can’t donate, please share  on your Facebook Wall so that it can get exposure I need to find a living donor quickly.  I don’t want to leave my family without a mother, wife, sister and grandmother. That is what I fear for more than I fear for my life.  Thank you for reading this, for your consideration and for sharing my story with the world.

Warrior Judy Akin * December 2020 WARRIOR OF THE MONTH

Hawaii, USA

 
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Hope with Jonathan Interview CLICK HERE

I was diagnosed in August 2019 with a GFR of 22.  I was hospitalized for a biopsy and 500 mg of steroids for three days.  I left the hospital with a treatment plan that included high dose prednisone.  I quickly decided that I was going to avoid dialysis for as long as I possibly could. After a lot of research and meeting with a nutritionist, I made the choice to go plant based. The combination of the prednisone treatment and the diet, I was able to raise my GFR, and lower my creatinine and protein.  

Currently I am considered stable at a GFR that fluctuates between a 45 to 55. The prednisone is down to 10mg a day. I have embraced the plant based cooking, and enjoy sharing my recipes and information that I have gained with others. 

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Warrior Andre

North Carolina, USA

Warrior Andre needs a Kidney.

He is listed at==> DUKE HEALTH 

Phone Number : 1 252-915-9415

 

I have kidney failure - 25 years of living with diabetes my kidneys no longer work and that’s why I’m writing today to ask for your help - Living with diabetes has been tough (daily insulin injections - frequent doctors’ visits) but adding kidney failure to the mix has made my health so much worse

I use to go to hemo dialysis 3 times a week for a machine to do the work my kidneys can no longer do - It took over 15 hours out of my week - every week, and drains me of all my energy - The schedule made it difficult to work, travel, and even see my family that's out of town and state - I am Ineed a kidney transplant - But the average wait time for a kidney transplant while on the deceased donor waiting list is 3-5 years - Living kidney donation is the best option to help me get off the waiting list and live a healthier life - That’s why I am writing to all of you - I am in need of someone to donate a kidney to me - What most people don’t know is that you only need one kidney to live a healthy life - I would appreciate it if you would consider donating your kidney and/or sharing this post to get the word out for me - That would mean so much - Thank you all for taking the time to read my story. Recently, Andre's condition with Diabetes sadly worsened and he had to have a leg amputated below the knee. Please pray for him and help him find a Living Kidney Donor.

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Warrior Shane Blanchard

Iowa, USA

Warrior Shane needs a Kidney.

He is listed at University of Iowa Health Care Transplant Centre. 1-319-356-1136

Blood Type: AB+

To hear Shane's full story

CLICK HERE

 
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Warrior Elizabeth (Biz) Chapman

Ontario, Canada

 

My name is Elizabeth. My family calls me Biz. At 16 I was diagnosed with lupus, which I managed for several years. Eventually, it caused my immune system to attack my kidneys. Now, at 29, I’m experiencing renal failure and have been put on hemodialysis.

Presently I am on hemodialysis three times a week for several hours at a time. Essentially, my life has been put on hold.

I'm very passionate about travel and the outdoors, but since I have been on dialysis I have been unable to pursue these things that make me feel complete.

My best option for returning to an active and adventurous lifestyle as soon as possible is to receive a transplant from a living donor.

A living donation is when a healthy person freely decides to donate one of their kidneys. Unfortunately, in Ontario the wait time to receive a transplant from a deceased donor can be up to seven years or more. Living donations are far more beneficial. In addition to the shorter wait times, the general procedure can increase my survival rate, the kidney can last significantly longer (upwards of 20 years as opposed to 10), and the success rate of the transplant is much higher than a transplant from a deceased donor. Not to mention, living kidney donations are the most successful of all transplant procedures!

Are you interested in saving my life? See the link below to fill out the initial living donation forms:

https://www.uhn.ca/Transplant/Living_Donor_Program/Documents/Living_Donor_Health_History_Form.pdf

Please contact me if you have any questions!

Email: bizneedsabean@gmail.com

Warrior Cayden

South Carolina, USA

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Cayden may have just celebrated 4yrs since he got his kidney transplant but his journey started when he was just two and half weeks old. What had appeared has a normal beginning to life would actually be the farthest thing from true, after 2 1/2 weeks his pediatrician stated that there was nothing more office hours could do, we needed to take him to MUSC right away. What was originally thought to be a failure to thrive turned out to be more, much more than we thought. After hours of different tests, blood takes and at last an ultrasound, it was quickly realized that the issue was with his kidneys. He was eventually diagnosed with end stage renal disease due to a ureterocele causing a backup of fluid. His labs showed a sodium of 109, potassium out of whack and a doctor amazed that he was still functioning.  They would fight for weeks to get him stable enough to move forward to try different methods to relieve the pressure on his kidneys but to no avail. In time it would show that both of his kidneys would never function as they should for him to  live and function normally. So they moved forward, placing a g-tube and peritoneal dialysis catheter.  I learned in the remaining days at the hospital, how to do dialysis, give medication and the everyday care of a medically fragile child like Cayden. he spent 15 months on dialysis, therapy appointments, doctor visits and regular lab check up's. Each ounce he gained meant we were that much closer to a transplant, the less time we spent in the hospital the faster we got approved to be placed on the transplant list. On December 22, 2016 he was officially listed on the transplant list, we would be entering in as an exchange due to the fact that myself and two of my brothers had antibodies that would cause a higher risk  for rejection. My little brother would give his kidney so Cayden would eventually be able to receive his.  Cayden would get the call in January but unfortunately that first donor would get sick making a transplant impossible. But luckily a few weeks later we received word that we had the perfect match for Cayden. So on 02/21/2017 we started on our next step of Cayden's amazing journey.

 
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Warrior Dee Moore

Birmingham, England

Instagram & Facebook: @diaryofakidneywarrior

Twitter: @diaryofakidneyw

YouTube: https://youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw

For Dee's Podcast information Please Click Here

 

It started with a Headache

It started with a headache, well, not just any old headache, a stabbing headache! A headache that I couldn’t ignore; you see for me, a headache represented something more sinister. The last time I had a headache like this was back in 2003 when I was pregnant with my first child and to cut a very long story short, I nearly went blind and I needed lifesaving brain surgery. So for me, a headache was what finally forced me through the doors of A&E. TO READ MORE CLICK HERE

Warrior Lisa Baxter

New York, USA

For The Lisa Baxter Show Click Here

 
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I got PKD from my Father. We didn't know much about back then. I had six siblings on dialysis 2 aunts an uncle mother in law great aunt. I was on dialysis 12 years before I got my kidney. During the 12 years I learned what I could for myself family and kidney world I became an Advocate in my Center. I still held my job as a Social Worker was a caregiver for several family members. I started giving out all type of resources job apartment food GED ESL immigration scholarship etc I started my company Blessed kidney Connections. I started the Lisa Baxter show 10 years running. I would spread awareness school senior center community church college. I wrote six books Through the eyes of a dialysis patient Books@bookbaby.com Melsy takes dialysis to show & tell Amazon Barnes and Noble sales@Xlibris.com. I love people I won awards but the real reward is helping others. My new kidney is almost 5 years old. I call my kidney Hannah after a baby we wanted to have. He was a perfect match but became I'll and couldn't give me a kidney my husband Mitchell Baxter. I still Volunteer at hospital juvenile justice center. I do health fair to raise awareness. I also have bone joint disease Arthritis Bronchitis osteoporosis but I am alive and kicking.

Anything to add: I love the smile on people face watching them go stronger. I work for Rise Up East New York as a Health Campaign Manager working with a great team to help a community to live learn prevent but keep living.

Warrior Brittany Du

Texas, USA

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My God's Untold Story 

My God's Untold Story started when I was discovered with end stage kidney disease in December 2017. November 27, 2018 was put on the UNOS (United Network of Organ Sharing) transplant list yet God has gifted me a another life with a kidney. Even though I was never gaining so much weight, things were for me fluctuating I believe God had a purpose for me in life and faith I can't wait to celebrate in July 5th my second transplantversary. Trump made an executive order on advancing kidney health I share this day too when I got out of the hospital after transplant.  


An anonymous kidney donor who learned about living donation on the radio saved Brittany’s life July 5, 2019 and this is my happy day.


“Before I knew I was going to have a kidney transplant, my parents had asked me if I could live on dialysis,” Brittany said. “I made the decision that it was God's will. Because my blood type is really rare, I was supposed to wait 5-7 years.” Brittany waited 7 months thanks to an altruistic living donor. “The night before my transplant, Dr. Greg Abrahamian called my dad and said the anesthesiologist found an arrhythmia in my EKG. The next day I was admitted to the hospital.” Even though my kidney transplant surgery was postponed, we noticed the many blessings God had given me.


Our house was pitched black with no lights but I had to call my dad from his cell phone at 3 am to help am to help me since I was still connected with the peritoneal dialysis machine and figure out how to manually disconnect me and taking a sponge bath to be sterile before heading over for my procedure with flashlights.


My dad was doing 40 days of prayer. God was speaking to him to pray for the many blessings in the darkest hours. We already noticed the many blessings God gave me as a living kidney donor willing to donate to me later when we left to go to the hospital my sister called us and said our lights went back on. My dad and I remembered how in January 2018 my heart stopped and my dad prayed for a miracle. This was God's miracle that He used and showed me. I feel blessed every day by a walking miracle to help empower and educate others.


Brittany got to go home on July 10, 2019 with a new kidney, she also shares this was the day The Executive Order on kidney disease was signed by President Donald Trump. A milestone for her and the country!" I feel blessed every day by a walking miracle to help empower and educate others.

My favorite Scripture verse that gets me through everything:

Psalms 73:21-26 When my heart was sad and I was angry, I was senseless and stupid I acted like an animal toward you. I am always with you. You have held my hand. You guide me with your advice. Later you will receive me in honor. I have no one in heaven but you. I want nothing on earth besides you. My health may become weak but God is my strength. He is mine forever. 

(Jesus is our Spiderman)

 

Warrior Teresa Clark

USA

 
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Hello my name is Teresa Clark. I have Polycystic kidney disease. I was diagnosed in my 30s and started dialysis at age 55.  When my Dr informed me that it was my time to start dialysis I decided to do the least invasive and do peritoneal dialysis  I did this dialysis at night and worked three 12 hour shifts a week at a local hospital as an ER Secretary. Since I was doing dialysis at home my husband and I decided to purchase a Motorhome to travel the country in. As we were researching which one we one we wanted I had two bad hernias and they had to take my port out which meant I now had to do dialysis incenter. My husband said I guess no Motorhome and I said oh yes we can still travel we just have to buy a Motorhome with a good generator in case we need to use it. We purchased the Motorhome and traveled fulltime while I did dialysis incenter all over the country for 2 1/2 years. When we were in Florida we were invited to a dinner sponsored by nxstage. We arrived at the restaurant and there was a big Motorhome with Nxstage written all over it we knocked on the door and met a guy named Harvey who followed his favorite football team all season with his Motorhome and did home hemo along the way. We were so impressed and he encouraged us to do the same.  When we arrived in Arizona I inquired about home hemo a month later my husband and I started training I felt amazing after the first treatment!!!  It’s now two years later and yes we are still traveling the country  in our Motorhome with our two black labs and doing home hemo along the way.  I live my life on dialysis my way and live each day to fullest 😊😊😊

Teresa Clark

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Hi Everyone,

My name is Julia Aronson. I am reaching out to you all with the hope that you can help me share this news far and wide. I am 30 years old and live right outside of Denver in Castle Rock, Colorado.  I recently learned that I need a kidney transplant and that a living donor is my best shot at survival. I have had systemic lupus since 2004. In 2017 I was also diagnosed with lupus nephritis which compelled me to drop out of nursing school and is now destroying my kidneys. I am currently undergoing dialysis three times a week leaving me feeling crummy, weak, and exhausted without motivation to do much.  I want to be healthy and productive again; I am young and hope to have a long life ahead of me!! I want to start a business, enjoy working with and riding horses, dancing

at live music concerts, playing and hiking with my dog, traveling the globe and, someday, starting a family. I look forward to a time when I’m not tired or unwell and can live my life to the fullest, able to return the support of family and friends and give back to the world. 

 

I started Dialysis on an emergency basis on 9/29/20 and that day I started my Instagram @haute_hemodialysis to share my story, find a donor for myself, and to help support anyone going through this. I had been sick since I was 14 and never planned on sharing my story until I had no choice. In one of the scariest situations in my life I found solace in the “spoonie” community, and it was actually empowering. so while dialysis is my full time job at the moment I engage with and try to offer help and support to my followers. I don’t always post pretty things, but kidney failure is not pretty and I want to be as real as possible about this journey. I think it’s important to be armed with as much knowledge as possible.

At the moment I am on pause because in January I was hospitalized due to TWO pulmonary embolisms. They are usually fatal because they are so rarely detected. I got really lucky, but am on blood thinners and a PE is considered a major cardiac event so I must wait at least 6 months. In the meantime I continue to take care of myself, spread my story while helping others, and I am working on getting my strength back to be in the best shape possible for transplant! In the future after my surgery I plan on continuing to help kidney and lupus warriors that are struggling. I want a kidney for everyone. It’s startling to me that the majority of people waiting for organs are waiting for kidneys.

I realize I am making a monumental request, but a kidney from a living donor can save my life. Typically, a blood relative, spouse, or close family friend donates one of their kidneys to the patient in need. However, any altruistic individual can make an anonymous donation without knowing the recipient personally. A donor can live a normal, robust life with only one kidney. Donation costs are covered by my insurance. Someone who is blood type B or O (positive or negative) has the greatest chance of being a good match, but anyone can donate regardless of blood type through a program called paired donation.

To see more, visit:

www.julesneedsakidney.com

Please forward this appeal by email and/or share my story on social media to help find me a new kidney. Search for my Facebook page, Jules Needs A Kidney, to see updates on my progress. Look me up on Instagram @haute_hemodialysis to follow my battle with kidney failure and read my tips offered to encourage other sufferers.

If you have questions or a message for me, please email my Living Donor Champions: my friend, Kirsten Lunding, and my parents, Joan and Jeff Aronson, at JULESNEEDSAKIDNEY@COMCAST.NET

IF YOU WOULD CONSIDER BEING MY LIVING DONOR,

Please visit http://www.pslmc.com/signmeup to fill out a survey to start the evaluation process.

Link will open One Medical Passport. Click green “Register” button. Create your account. Continue. Choose Presbyterian/St. Luke’s as Medical Facility. Enter JULIA ARONSON as Named Recipient.

You may also call the PSL Transplant Center at (720) 754-2155, or (800) 758-1005, Option 3.

With gratitude,

Jules

Warrior Patricia Stabler Yates

South Carolina, USA

Facebook Page: Patricia Needs a Kidney Donor

Donation Information: 

Medical University Of South Carolina Department of Transplant Surgery 162 Ashley Ave, MSC 586 Charleston, SC 29425 Transplant Cooridnator: Tara Terell or Living Donor Coordinator: Michelle McQueeny Phone: (843) 792-5097 Phone: (800) 277-8687 Fax: (843) 876-2968 https://mychart.muschealth.com

 
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This is my kidney story I had no idea I was even sick next thing I knew I was working daily on two jobs fast food and retail I'd go I at 11 and work until 3 pm and then go to my second job and work until 9 pm every night. I ended up losing weight all because of the first job in fast food due to the heat that was created due to cooking and the second with doing heavy lifting of boxes, I happened to go into work one day after the restaurant and my boss with the retail job asked me what was wrong with me I went and said why he said you looked have dead I didn't think nothing if it and I had already started to lose weight with the only symptoms of being sick and my clothes nearly staying up on my waist. Well eventually my then boss he had changed jobs and I was let go so I went looking for yet another job but I had already quit the restaurant job bf starting to look so I found another job and started working there not long after that I started getting sick losing even more weight. So it came down to me being sick daily and my then assistant manager asked if I was ok of course I say I don't know and she told me to go home of course I didn't want to all because she would have been left at the store by herself the rest of the day so by this time I was sick and tired of being sick so I went to DR's care back then and ask for a full blood work up, and low and behold it comes back as hyperthyroidism and kidney failure the DR couldn't tell me just how bad the CKD was at the time when I asked him so I was set up with a referral to the only transplant center at the time in south Carolina. So I went to all my appointments and found out I was at end stage renal disease and a GFR 15% from there I started seeing all my kidney DR'S nephrologist and getting eventually transfer to dialysis very quickly but took me a while to decide to do dialysis but by this time I was at stage 5 with a GFR of 10% but took me months to decide and put it basically I hold to figure out what dialysis I would choose which turned out to be peritoneal the best choice I could make for myself at the time so I went through the surgery for my Pd catheter and not long after for my fistula that would go on to not last and have another done which would be the second I should have stopped there only because it didn't last and ended up with a third fistula and it did last either. So I went on to use my Pd catheter for three and a half years before getting my transplant and now I am back to where I was sitting the every first time I was diagnosed the first time with CKD and looking for my lifesaving living kidney donor this time.

Hello. My name is Patricia Yates I am 58 yrs. old and I have stage 4 CKD with anemia and have a GFR of 19% I am also an O + blood type and can use any blood type and try for a cross match. I also would be deserving of my second chance at life I am in need a living kidney donor and would forever be grateful for anyone that is willing to help save my life. I am a wife of 40 years and a mother of two adult children and two young grandchildren. I still have a deceased kidney donor transplant that is close to needing a new one my team set me up to get a biopsy done in 2015 about eight months after my transplant due to a borderline rejection that was treated no fault of my own with my deceased donor kidney it was found that I have Acute Kidney Injury, with no explanation except that my transplant doctor's thinking it could be that my deceased donor was going into the beginning stages of kidney failure herself as well after getting the gift of life donor kidney that in life she wanted to help after her death. I have always diligently taken all of my immunosuppression medications over the 5.5 years or so for my donor kidney and so not to reject the kidney.

 

 

 

Hi my name is John, I am an American living in Los Angeles. I love to play soccer, basketball and spent time with my awesome family and friends. Unfortunately, I have this nasty, bad, potentially fatal kidney disease call PKD, it causes cysts to grow all over my kidney and eats up all my kidney functions and leads to kidney failure. It is a genetic disease I inherited at birth, and my dad had it, and he passed away due to this terrible PKD disease. Its wreaked havoc in my family.         

         

California has longest wait time of almost 10 years, I may die on dialysis before I can get a kidney. Furthermore, Dialysis is a slow killing machine, so I pray for a matching donor soon!         

         

A living donor has longest longevity for recipients, and PKD patient like myself have the best outcome after transplant. Great news is PKD disease will not come back on your new kidney! I will treasure and treat your kidney right, I am on vegan diet!         

         

I still have so many long term plans, people to help and dreams to achieve. It is a ridiculously huge thing to ask, and I feel awful writing this. But as much as I will try and make every effort to stay well and strong, I am only going to get weaker and weaker as time goes on due to the progression of this disease.         

You only need one kidney to live, I need one kidney to survive.         

CALL/TEXT me 818-949-8325 for info on how to help me. Please spread the word with REWARDS to help increase my chance at life! Thank you so much for reading all of this... LOVE!  

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